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Consumer Health Online -- Not One Size Fits All 

 

 
 
Tags:  michigan plastic surgery  websites  searching  health  rare diseases  medlineplus  acor  healthfinder  consumer health  merck  aafp  medicine  internet  2.0 
Views:  226
Published:  May 03, 2010
 
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Slide 1: Consumer Health Online Patricia F. Anderson <pfa@umich.edu> Health Sciences Libraries University of Michigan © 2007 Regents of the June 14, 2007 University of Michigan. All rights reserved.
Slide 2: Not One Size Fits All  Health care consumers are individuals, with unique information skills and needs as well as unique medical histories.  Online consumer health information has evolved (and continues to change!) to address the variety and range of questions.  Here are some of the wonderful but sometimes less well known consumer health resources available free on the Web.
Slide 3: Some of My Personal Favorites Logos montage: FamilyDoctor, KidsHealth, healthfinder. Medem, NORD, MedlinePlus, Merck Manual, MedHelp, Netwellness
Slide 4: URLs for Some of the Best  AAFP: Family Doctor: http://familydoctor.org/  healthfinder: http://www.healthfinder.gov/  Kidshealth: http://www.kidshealth.org/  Med Help International: http://www.medhelp.org/GettingStarted.htm  Medem.com: http://medem.com/MedLB/medlib_entry.cfm  MedlinePlus: http://www.medlineplus.gov/  Merck Manual of Medical Information - Home Edition: http://www.merck.com/mmhe/index.html  National Organization of Rare Disorders (NORD): http://www.rarediseases.org/  Netwellness: http://netwellness.org/
Slide 5: Question: Do I need to see the doctor? Is it OK to wait a while, or should I come in right away?
Slide 6: FamilyDoctor:  AAFP: Family Doctor: http://familydoctor.org/
Slide 7: FamilyDoctor: Search by Symptom  AAFP: Family Doctor: http://familydoctor.org/
Slide 8: healthfinder.gov  healthfinder: http://www.healthfinder.gov/
Slide 9: healthfinder - Online Checkups Collection  healthfinder: http://www.healthfinder.gov/
Slide 10: Merck Manual - A Standard Quick Reference Tool http://www.merck.com/mmhe/index.html
Slide 11: Question: I did a search in Google, but there is so much to look at! I don’t know where to start.
Slide 12: MedlinePlus  For the person with a new diagnosis  Or the person who is new to health information searching  MedlinePlus: http://www.medlineplus.gov/
Slide 13: MedlinePlus  MedlinePlus: http://www.medlineplus.gov/
Slide 14: Question: I like my doctor to tell me what’s best. I don’t want to have to look hard. Can’t you just help me?
Slide 15: Medem - From Major Associations  Medem.com: http://medem.com/MedLB/medlib_entry.cfm
Slide 16: Medem - From Major Associations  American Academy of Ophthalmology  American Academy of Pediatrics  American College of Allergy, Asthma & Immunology  American College of Obstetricians and Gynecologists  American Medical Association  American Psychiatric Association  American Society of Plastic Surgeons  … and many more …
Slide 17: MedlinePlus - For the Patient with a New Diagnosis  MedlinePlus: http://www.medlineplus.gov/
Slide 18: Question: This isn’t a big deal -- I just want to know what some of these words mean. I didn’t want to bother you by asking. Or could you show me a picture? I don’t really understand where in my body this is .
Slide 19: healthfinder.gov  healthfinder: http://www.healthfinder.gov/
Slide 20: healthfinder.gov  healthfinder: http://www.healthfinder.gov/
Slide 21: MedlinePlus  MedlinePlus: http://www.medlineplus.gov/
Slide 22: Question: I looked at some of the sites that were recommended, but they were too simple -- I want more. Maybe not too much more, though. Or …
Slide 23: Question: I like to find my own information. I don’t like people to make up my mind for me. But I don’t want to waste time -- I want to find some good stuff quickly.
Slide 24: healthfinder - Specialized Consumer Health Search Tool  healthfinder: http://www.healthfinder.gov/
Slide 25: healthfinder - Specialized Consumer Health Search Tool “Search consumer health information using Google technology for the most relevant search results. This special search features information selected from over 300 U.S. government Web sites and 600 nonprofit organizations.”
Slide 26: MedStory Medtory: http://www.medstory.com/
Slide 27: Question: I’m going to be having a procedure done. The handouts the clinic gave me are fine, but I’m a little nervous and I’d really like to see a video or talk with someone who has had this done.
Slide 28: MedlinePlus - Interactive Tutorials & Surgery Videos  MedlinePlus: http://www.nlm.nih.gov/medlineplus/tuto rial.html
Slide 29: MedlinePlus - Interactive Tutorials & Surgery Videos  MedlinePlus: Interactive Tutorial: Mammogram: http://www.nlm.nih.gov/medlinepl us/tutorials/mammogram/htm/ind ex.htm
Slide 30: American Self-Help Clearinghouse American Self-Help Clearinghouse: http://www.selfhelpgroups.org/ OR http://mentalhelp.net/selfhelp/
Slide 31: ACOR Association of Cancer Online Resources: http://acor.org
Slide 32: Question: I want a second opinion, but I don’t want my doctor to think I don’t trust him. I just want to feel more sure, understand better, and not take up all his time. It might take me a while to really understand all this.
Slide 33: MedHelp - When There are More Questions  Med Help International: http://www.medhelp.org/GettingStarted.htm
Slide 34: MedHelp - When There are More Questions  Med Help International: Partners: http://www.medhelp.org/medical_partners.htm  American Academy of Opthalmology  Cleveland Clinic  Cornell University  Juvenile Diabetes Research Foundation International  National Jewish Medical and Research Center  Partners HealthCare  USF Health
Slide 35: NetWellness  NetWellness: http://netwellness.org
Slide 36: Question: It’s not me -- it’s my kid. I can’t figure out how to explain to him what’s happening.
Slide 37: KidsHealth - For Parents, Teens, and Kids  Kidshealth: http://www.kidshealth.org/
Slide 38: Kids.gov: Health Kids.gov: Health: http://www.kids.gov/k_health.htm
Slide 39: Question: When possible, I like to avoid drugs. I use mostly herbs and alternative or complementary treatments. I heard that some of these can interfere with the drugs you’ve prescribed. How can I learn more?
Slide 40: About Herbs (MSKCC) MSKCC: About Herbs: http://www.mskcc.org/mskcc/html/1157 0.cfm
Slide 41: MD Anderson: CIMER MD Anderson: CIMER: http://www.mdanderson.org/department s/cimer/
Slide 42: MD Anderson: CIMER MD Anderson: CIMER: http://www.mdanderson.org/department s/cimer/ Reviews of Therapy
Slide 43: Question: You know that what’s wrong with me isn’t something that is easy to understand or that turns up with a quick search. I already tried that. You folks are great, but I want to talk to some other people like me or find information beyond what you’ve given me. Isn’t there some place I can start?
Slide 44: NORD - For Rare Diseases or Uncommon Health Concerns  National Organization of Rare Disorders (NORD): http://www.rarediseases.org/
Slide 45: Question: I heard about a treatment for my condition in the news. What’s the scoop on that? (IE: What is the latest information on omega 3 fatty acids for mental health treatment?)
Slide 46: ScienceDaily: Health ScienceDaily: Health: http://www.sciencedaily.com/news/healt h_medicine/
Slide 47: Question:  I want to know everything possible. How would you look for information on this? Where would you go?  --> These days many people search PubMed, Guidelines.gov, eMedicine and other resources intended primarily for the practicing clinician. How these are or are not integrated into the patientpractitioner relationship must be a matter of judgment related to the particular situation in which the question arises.
Slide 48: Other Questions?  Contact: Patricia Anderson at pfa@umich.edu

   
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