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Slide 1: CONSUMER HEALTH ONLINE Patricia F. Anderson / Perplexity Peccable <pfa@umich.edu> Health Sciences Libraries, University of Michigan © 2009 Regents of the University of Michigan. This work is subject to a Creative Commons license.
Slide 2: Not One Size Fits All    Health care consumers are individuals, with unique information skills and needs as well as unique medical histories. Online consumer health information has evolved (and continues to change!) to address the variety and range of questions. Here are some of the wonderful but sometimes less well known consumer health resources available free on the Web.
Slide 3: Some Favorites  Logos montage: FamilyDoctor, KidsHealth, healthfinder. Medem, NORD, MedlinePlus, Merck Manual, MedHelp, Netwellness
Slide 4: URLs for Some of the Best          AAFP: Family Doctor: http://familydoctor.org/ healthfinder: http://www.healthfinder.gov/ Kidshealth: http://www.kidshealth.org/ Med Help International: http://www.medhelp.org/GettingStarted.htm Medem.com: http://medem.com/MedLB/medlib_entry.cfm MedlinePlus: http://www.medlineplus.gov/ Merck Manual of Medical Information - Home Edition: http://www.merck.com/mmhe/index.html National Organization of Rare Disorders (NORD): http://www.rarediseases.org/ Netwellness: http://netwellness.org/
Slide 5: Question:   Do I need to see the doctor? Is it OK to wait a while, or should I come in right away?
Slide 6: FamilyDoctor:  AAFP: Family Doctor: http://familydoctor.org/
Slide 7: FamilyDoctor: Search by Symptom  AAFP: Family Doctor: http://familydoctor.org/
Slide 8: healthfinder.gov  healthfinder: http://www.healthfinder.gov/
Slide 9: healthfinder – Online Checkups Collection  healthfinder: http://www.healthfinder.gov/
Slide 10: Merck Manual - A Standard Quick Reference Tool  http://www.merck.com/mmhe/index.html
Slide 11: Question:  I did a search in Google, but there is so much to look at! I don’t know where to start.
Slide 12: MedlinePlus    For the person with a new diagnosis Or the person who is new to health information searching MedlinePlus: http://www.medlineplus.gov/
Slide 13: MedlinePlus  MedlinePlus: http://www.medlineplus.gov/
Slide 14: Question:  I like my doctor to tell me what’s best. I don’t want to have to look hard. Can’t you just help me?
Slide 15: Medem - From Major Associations  Medem.com: http://medem.com/MedLB/medlib_entry.cfm
Slide 16: Medem - From Major Associations         American Academy of Ophthalmology American Academy of Pediatrics American College of Allergy, Asthma & Immunology American College of Obstetricians and Gynecologists American Medical Association American Psychiatric Association American Society of Plastic Surgeons … and many more …
Slide 17: MedlinePlus - For the Patient with a New Diagnosis  MedlinePlus: http://www.medlineplus.gov/
Slide 18: Question:  This isn’t a big deal -- I just want to know what some of these words mean. I didn’t want to bother you by asking. Or could you show me a picture? I don’t really understand where in my body this is .
Slide 19: healthfinder.gov  healthfinder: http://www.healthfinder.gov/
Slide 20: healthfinder.gov  healthfinder: http://www.healthfinder.gov/
Slide 21: MedlinePlus  MedlinePlus: http://www.medlineplus.gov/
Slide 22: Question:   I looked at some of the sites that were recommended, but they were too simple -- I want more. Maybe not too much more, though. Or …
Slide 23: Question:  I like to find my own information. I don’t like people to make up my mind for me. But I don’t want to waste time -- I want to find some good stuff quickly.
Slide 24: healthfinder - Specialized Consumer Health Search Tool  healthfinder: http://www.healthfinder.gov/
Slide 25: healthfinder - Specialized Consumer Health Search Tool  “Search consumer health information using Google technology for the most relevant search results. This special search features information selected from over 300 U.S. government Web sites and 600 nonprofit organizations.”
Slide 26: MedStory  Medtory: http://www.medstory.com/
Slide 27: Question:  I’m going to be having a procedure done. The handouts the clinic gave me are fine, but I’m a little nervous and I’d really like to see a video or talk with someone who has had this done.
Slide 28: MedlinePlus - Interactive Tutorials & Surgery Videos  MedlinePlus: http://www.nlm.nih.gov/medlineplus/tutorial.html
Slide 29: MedlinePlus - Interactive Tutorials & Surgery Videos  MedlinePlus: Interactive Tutorial: Mammogram: http://www.nlm.nih.gov/medlineplus/tut orials/mammogram/htm/index.htm
Slide 30: American Self-Help Clearinghouse  http://www.selfhelpgroups.org/ OR http://mentalhelp.net/selfhelp/
Slide 31: ACOR  Association of Cancer Online Resources: http://acor.org
Slide 32: Question:  I want a second opinion, but I don’t want my doctor to think I don’t trust him. I just want to feel more sure, understand better, and not take up all his time. It might take me a while to really understand all this.
Slide 33: MedHelp - When There are More Questions  Med Help International: http://www.medhelp.org/GettingStarted.htm
Slide 34: MedHelp - When There are More Questions  Med Help International: Partners: http://www.medhelp.org/medical_partners.htm        American Academy of Opthalmology Cleveland Clinic Cornell University Juvenile Diabetes Research Foundation International National Jewish Medical and Research Center Partners HealthCare USF Health
Slide 35: NetWellness  NetWellness: http://netwellness.org
Slide 36: Question:  It’s not me -- it’s my kid. I can’t figure out how to explain to him what’s happening.
Slide 37: KidsHealth - For Parents, Teens, and Kids  Kidshealth: http://www.kidshealth.org/
Slide 38: American Academy of Pediatrics  http://www.aap.org/topics.html
Slide 39: Kids.gov: Health  Kids.gov: Health: http://www.kids.gov/k_health.htm
Slide 40: Question:  When possible, I like to avoid drugs. I use mostly herbs and alternative or complementary treatments. I heard that some of these can interfere with the drugs you’ve prescribed. How can I learn more?
Slide 41: About Herbs (MSKCC)  MSKCC: About Herbs: http://www.mskcc.org/mskcc/html/11570.cfm
Slide 42: MD Anderson: CIMER  MD Anderson: CIMER: http://www.mdanderson.org/departments/cimer/
Slide 43: MD Anderson: CIMER   MD Anderson: CIMER: http://www.mdanderson.org/departments/cimer/ Reviews of Therapy
Slide 44: Question:  You know that what’s wrong with me isn’t something that is easy to understand or that turns up with a quick search. I already tried that. You folks are great, but I want to talk to some other people like me or find information beyond what you’ve given me. Isn’t there some place I can start?
Slide 45: NORD - For Rare Diseases or Uncommon Health Concerns  National Organization of Rare Disorders (NORD): http://www.rarediseases.org/
Slide 46: Question:  I heard about a treatment for my condition in the news. What’s the scoop on that? (IE: What is the latest information on omega 3 fatty acids for mental health treatment?)
Slide 47: ScienceDaily: Health  ScienceDaily: Health: http://www.sciencedaily.com/ news/health_medicine/
Slide 48: Question:  I want to know everything possible. How would you look for information on this? Where would you go?  --> These days many people search PubMed.gov, Guidelines.gov, eMedicine, ClinicalTrials.gov and other resources intended primarily for the practicing clinician. How these are or are not integrated into the patient-practitioner relationship must be a matter of judgment related to the particular situation in which the question arises.
Slide 49: Other Questions?  Contact your local library